Let me start this off by saying that this is not a post slagging off the Paralympics. The athletes that partake in the games are absolutely amazing and I tip my hat (I’m not wearing a hat, but let’s pretend I am) to all of them. My problem is with the media and how Paralympians…
Category: chronic condition
How Aren’t You in Pain?
As I lie here with my left knee heavily braced, the pain surging through my whole leg, pulsating, agonising, my mind begins to wander. I only ever voiced this a few months ago and as soon as I said it out loud, I realised how ridiculous it might sound to someone who doesn’t know me….
I’m Really Flexible and it’s NOT Sexy
I have Ehlers-Danlos Syndrome type 3; the hypermobility kind, the stupidly bendy ‘how don’t you snap?’ one. Some people will probably call the majority of us with EDS 3 – double-jointed, but that’s a myth, I mean, how can you have double the amount of joints? I’ve written quite a few posts on EDS, and…
Proprioception and Ehlers-Danlos Syndrome
When I was diagnosed with EDS type 3, (hypermobility, HEDS, whatever you want to call it) ten years ago I was naive enough to think that Ehlers-Danlos would be the strangest words I’d hear regarding my condition. Alas, my nineteen year old self soon learned a lot more; proprioception being one.What is proprioception?Basically, proprioception is…
#ShitAbledPeopleSay – My Response
Every other day a hashtag appears on Twitter and causes controversy. I first saw this ‘shit abled people say’ hashtag last Saturday and after scrolling through the comments disabled people shared, I decided to add a few of my own. My somewhat naive self didn’t realise that by disclosing a few of the hurtful, uneducated…
What Disability?: The Adaptability of Children
I spent last weekend with my three year old nephew, Kaine, and it got me thinking about how he sees me. I’m his Auntie Sarah, I use crutches, I use an electric wheelchair, I wear splints and take tablets, but most of all, I make a huge fuss out of him, I buy him toys…
Medication Made Me Say It
I’ve said quite a few hilarious things when I’ve been slightly off my face on prescription drugs. This is completely different to my Brain Fog series, because brain fog happens on the daily, and here I’ll be sharing silly things I’ve said/done when I’ve taken really strong medication and the effects it has on my…
Scope’s #30toWatch – Nobody is ‘too pretty’ to be in a Wheelchair
Last year I wrote a post about being disabled and wearing makeup; I never thought it’d get as much attention as it did because I was simply expressing my views on how society judges disabled people that choose to put cosmetics on their face. I knew it was as issue, I knew a lot of…
Diagnosed 10 Years Ago Today
Last month I wrote a letter to myself on the day I was diagnosed, I mentioned that the date has been burned into my memory, and today is that date ten years on. 06/06/06Six six six Ten years. Ten whole years since someone told me the strangest words I’d ever heard. Since, I didn’t have…
A Reply: Why Take Medication if it Doesn’t Take Away All the Pain?
I’ve seen this question asked a lot on social media lately, ‘why take medication if it doesn’t take away all the pain?’ I’m pretty sure most chronic pain sufferers have had to answer it at one point, and if you haven’t you no doubt will in the future.I was 17 the first time I was…