I’m always very open and honest about my chronic illnesses (or at least I try to be) but there’s still sides of my condition that not everyone is aware of. Why? Because my health makes me quite vulnerable and only people that live with me see me at my worst. At the moment I live…
Category: chronic condition
Health Update | PoTS Follow-Up
In September I went for three days of autonomic tests at the National Hospital for Neurology and Neurosurgery – you can read all about the tests I had here. I received a letter a few weeks after my tests with my results but obviously still had to have a follow-up appointment with my consultant. I…
Brain Fog #3
Don’t expect to be reading this and learning something about brain fog, this series is all about the ridiculous things I say, or try to say, when brain fog has kicked in and I make no sense. I’m not a very serious person and I laugh quite a lot so I won’t take offence if you…
Wheelchair Update: £5k in 26 Days
WE DID ITTHANK YOU SO MUCH! A month ago I wrote a post about how I need a more specialised wheelchair; I had to raise £5000 and hoped to have it before Christmas. I wasn’t pinning my hopes on raising it really quickly and never in my wildest dreams did I think I’d raise it…
Mental Health Update: Paranoia, Rejection and Humilitation
I first discussed my mental health back in May; I touched on how confrontation terrifies me and that I’m consumed by paranoia. This hasn’t changed. Although I’m really, really working on it. I’ve figured a few things out about myself whilst going to CBT that have made me realise why I am the way I…
To the Doctor that Told Me She Wouldn’t Patronise Me
I’m no stranger to my GP surgery; I’m pretty sure if you suffer with a chronic condition you’re well-known at your local doctors. However, I do avoid going if I can. They mostly blame any new symptoms on my preexisting condition(s), so I’ll only go if I’m really concerned or can’t get any relief at…
I Need a More Specialised Powerchair – Can You Help?
Get Sarah a Powerchair This is a hard post for me to write because I never thought I’d be in a position where I needed a wheelchair, let alone a wheelchair that is so expensive with functions I never knew existed. I have this constant stabbing in my chest because I’m so worried that I’ll…
24 Things I Couldn’t Live Without As a Spoonie
Luckily in this day and age we have a lot of resources and equipment at our fingertips. As someone with a disability, there’s quite a few items I need in my everyday life to help it run more smoothly. Now, I don’t have unlimited funds (if only) so I don’t have every product that could…
The ‘Done’ List: Acknowledging Achievements
I’ve always been overly critical of myself; I give myself a hard time and feel guilty if I spend a few hours resting. As someone that suffers with chronic pain, I should be used to chilling out and letting myself recover but I put a lot of pressure on myself, and never give myself credit…
One Year Follow-Up: Stanmore Pain Management and Rehabilitation Programme
Can you believe that it’s been a year since I spent three weeks in rehab? Where has the time gone? I distinctly remember the nerves I felt the weeks leading up to the programme as if it was last month. The apprehension, the anticipation, the terror. I was terrified, I’ll openly admit that; it was…