Last month or the month before I headed over to Glenfield hospital in Leicester for oesophageal manometry and pH tests. I was meant to have them both on the same day, however, when I got to the hospital, the machine was faulty, so I had to go back a few weeks later. It was pretty…
Category: chronic condition
10 Reasons I’m Awesome BECAUSE OF My Disability NOT Despite It
Do you know what I’m sick of seeing? ‘Oh <insert persons name here> is so lovely despite their disability’. As someone that identifies as disabled, that one word, ‘despite’ infuriates me so much. Why can’t they just be lovely? What does their disability have to do with anything? Using that shitty little D-word is so…
My Personal Independence Payment Assessment and Decision
Back in February the brown envelope of doom landed on my doorstep. I wasn’t expecting it so wasn’t struck with anxiety when I opened it but as soon as I read the first few lines the panic set in. It’s no word of a lie how much fear the assessment process is for disabled people…
I Want To Write But I Can’t
You may or may not have noticed that for the last few months my blogging schedule has become pretty nonexistent. I’m very much a routine person, I always have been, I like to do things a certain way and on a particular day, I just find it works better for me but lately I’ve been…
Gastroscopy: The Day Of
After I wrote a detailed post about my last MRI scan a few people stated that they liked that kind of post and if I had any other procedures to write about those too. So here I am sharing all the secrets to my latest test at the Endoscopy Unit. I had a gastroscopy which is…
MRI Scan: The Day Of
I’ve been hella lucky to have two MRI scans (sense the sarcasm?) within six weeks of each other. I usually have at least one per year and have done since I was a teenager, yet they still bother me. I’m claustrophobic and they freak me out; so a few weeks ago I wrote a post…
Me, Myself and My Hair, Spoonie Style
I’ve had quite a lot of hairstyles and various colours throughout the years, and I must admit I haven’t always taken the best care of my hair. For some reason unbeknown to me (could it be the faulty collagen with EDS doing me a service?), my hair has consistently looked in good condition and had…
Mental Health Is As Important As Physical Health
It’s Mental Health Awareness Week and I wanted to continue the conversation about MH. It’s been a few months since I talked about it, and to be quite honest, I thought I was doing good. Then my physical health took a turn for the worse, and a few things online triggered me and knocked me…
My First Love, The Ableist
Content Warning: Sex, ableism I’ve been pondering about writing this post for a while and although I’ve wanted to get it out there, I was also really wary about reliving this period of my life as it wasn’t the best. At the time, I thought it was perfect, I believed it was how relationships went…
A Positive Message For New Wheelchair Users
A few weeks ago I shared a post called 6 Acts of Kindness I’m Grateful For As A Disabled Person; in that I talked about a few lovely things that strangers had done for me that had really helped me out and made my day easier, brighter, better. At the end of that post, Caroline from…