Spoonie Christmas Gift Guide

Welcome to my first Christmas Gift Guide, my loves. This one is especially for my chronically ill readers, or if you know someone who has a chronic illness and are unsure what to purchase for them. We’re not difficult, give us some pyjamas and we’ll be buzzing. 1. Soft Fleece Grey Snowflakes Lounge Pants |…

Me, Myself and My Hair, Spoonie Style

I’ve had quite a lot of hairstyles and various colours throughout the years, and I must admit I haven’t always taken the best care of my hair. For some reason unbeknown to me (could it be the faulty collagen with EDS doing me a service?), my hair has consistently looked in good condition and had…

Let’s Get it On: Sex and Disability

Last weekend a journalist came to my house and interviewed me on what it’s like having a sex life whilst disabled. We spent almost two hours discussing this subject that seems to be one of the most controversial and taboo topics when it comes to disability. Obviously I don’t find it unmentionable, or I wouldn’t…

Mental Health Update: Paranoia, Rejection and Humilitation

I first discussed my mental health back in May; I touched on how confrontation terrifies me and that I’m consumed by paranoia. This hasn’t changed. Although I’m really, really working on it. I’ve figured a few things out about myself whilst going to CBT that have made me realise why I am the way I…

To the Doctor that Told Me She Wouldn’t Patronise Me

I’m no stranger to my GP surgery; I’m pretty sure if you suffer with a chronic condition you’re well-known at your local doctors. However, I do avoid going if I can. They mostly blame any new symptoms on my preexisting condition(s), so I’ll only go if I’m really concerned or can’t get any relief at…

I Need a More Specialised Powerchair – Can You Help?

Get Sarah a Powerchair This is a hard post for me to write because I never thought I’d be in a position where I needed a wheelchair, let alone a wheelchair that is so expensive with functions I never knew existed. I have this constant stabbing in my chest because I’m so worried that I’ll…

It’s Not a Miracle, Some Wheelchair Users Can Walk

There’s something about awkwardness and disability that seem to be intrinsically linked. Nobody likes awkward situations but when you have a disability it’s nigh on impossible to avoid. The majority of the times I leave my house I’ll be faced with an uncomfortable situation. I’m a powerchair user but I also rock a set of…

24 Things I Couldn’t Live Without As a Spoonie

Luckily in this day and age we have a lot of resources and equipment at our fingertips. As someone with a disability, there’s quite a few items I need in my everyday life to help it run more smoothly. Now, I don’t have unlimited funds (if only) so I don’t have every product that could…

Stationery Galore: Huge Haul

If you’re a stationery lover, I can guarantee you will adore this post. It’s very picture heavy but I’m sure that won’t be a problem with any of my fellow stationery addicts. I’m pretty sure that I’ve lost at least a week of my life browsing Etsy and I’m totally okay with that as I’ve found…

The ‘Done’ List: Acknowledging Achievements

I’ve always been overly critical of myself; I give myself a hard time and feel guilty if I spend a few hours resting. As someone that suffers with chronic pain, I should be used to chilling out and letting myself recover but I put a lot of pressure on myself, and never give myself credit…