I’ve never spoken about this on here; I’ve literally posted so much about every other aspect of my health but hardly anything regarding my mental health. I’ve touched on it but never gone into detail because it’s something I’ve been struggling with and find difficult to talk about. But here we go.Please respect my candour,…
Category: spoonie
Letter To Myself on the Day of Diagnosis
As it’s EDS Awareness Month, I thought I’d write a letter to my nineteen year old self on the day I was diagnosed. It’s been almost 10 years since it was confirmed that I have Ehlers-Danlos Syndrome type III, but I’d suffered all of my childhood when I think back; it just got a lot…
I Told A Stranger That I’m Disabled
May to me is all about EDS Awareness Month. I was diagnosed with Ehlers Danlos Syndrome when I was 19, (10 years ago now, that makes me feel old) it took over six years before I received a diagnosis and there is still not enough knowledge about EDS.I’m really awkward when it comes to talking…
Non-Demanding TV Shows
When you’re a Spoonie, you spend quite a bit of time in front of the telly, or at least I do. I’m either in pain, highly fatigued or recovering from an injury. I thought I’d put together a list of TV shows that are easy to watch, that require no concentration, focus, demand; TV shows…
Open Letter to Train Passengers
I don’t use public transport that often. I have a car and I don’t mind driving but if I have to do a lot of driving in one day, I’m absolutely screwed, I have a flare-up that can last days, if not weeks and then I’m an irritable bitch. Unfortunately, Ian can’t drive so I…
Chronic Illness and Brain Fog
For as long as I’ve been living the Spoonie life (16 years), I’ve had these weird little bouts of fogginess. The combination of chronic pain, fatigue and lack of sleep take a huge toll on the brain and sometimes it’s really difficult to say words, let alone form sentences.When it comes to brain fog, I’m…
When The One Thing You Want = The One Thing You Can’t Have
I’ve read many a blog post on resolutions and things people want to change/do better since January rolled in, and as positive and/or inspiring they have been, it’s made me focus on the one thing that I want but can’t have. Yes, I’m here to be a little moody cow and put a dampener on 2016…
Things I’m Thankful For This Year
Happy New Year! I hope you all had a great 2015 and 2016 is even better. Sending all the positive vibes. I thought I’d kick off 2016 by listing a few things that I’m thankful for. Ian – My boyfriend is my bearded best friend and I’m extremely grateful for everything he does for me….
Chronic Illness and Feeling Like a Burden
I’ve been thinking about this a lot lately, about my life, my contribution, the burden my chronic illness has on my loved ones. I know I’m not the only person suffering from a chronic condition that feels this way but since it’s been on my mind, I thought I’d discuss it. Of course my partner…
20 Things Not to Say/Do to Someone in a Wheelchair
As a wheelchair user I’ve experienced quite a varied reaction from the able-bodied public, so I thought I’d share a few things that you shouldn’t say or do to those of us that use wheels.1. ‘I’m only parking here for five minutes.’– No, you’re really not, it’s a disabled bay, you don’t have a permit,…