Chronic Illness and Feeling Like a Burden

I’ve been thinking about this a lot lately, about my life, my contribution, the burden my chronic illness has on my loved ones. I know I’m not the only person suffering from a chronic condition that feels this way but since it’s been on my mind, I thought I’d discuss it.  Of course my partner…

30 Things About My Invisible Illness You May Not Know

It’s nearing the end of Invisible Illness Awareness Week 2015 and when I saw that Rachel over at Happy Little Syllables had posted this meme about living with an invisible illness, I had to share my story too. Invisible Illness Awareness week started on the 28th September and ends October 4th.Many of you know that…

Week Three: Stanmore Pain Management and Rehabilitation Programme, Part Eight

| Day One | That was my last night in the hotel; I can’t believe I’m already in my final week of rehab. I arrived at Stanmore at 9 am and unpacked my things ready for the weekend review. I completed the majority of my goals but didn’t download WorkRave as I was being stubborn…

Spoonie Struggle: Explaining my Disability to Others

How do you do it? How do you tell someone that you’re disabled? Is it as easy as just blurting it out?Do you not bother?Do you go into detail? I used to avoid it, I never said I was disabled, I didn’t identify as a disabled person; I was (and am) disabled but if I…

The Referral: Stanmore Pain Management and Rehabilitation Programme, Part One

As you know I’m disabled, and managing pain is vital. I’ve (almost) been on two Pain Management courses in the past. I was 18, I hadn’t been diagnosed with anything, I was terrified. The Pain Management course was an inpatient stay in a Liverpool hospital for six weeks. I was surrounded by much older people…

21 Things a Spoonie Doesn’t Want to Hear

1. But you don’t look sick, you look great.– What exactly does ‘sick’ look like? I didn’t realise I was doing it wrong.– I left my ‘Chronically Disabled’ banner at home, sorry.– You didn’t see me throwing up all morning and then crying when I tried to lift my leg so my partner/family member/carer/friend could…