My Biggest Insecurity As A Child

Do you ever look back at things you used to worry about as a child and wonder why you wasted so much time thinking about them? Things that kept you up at night? Things that you made a big deal out of? Things that were so small you don’t even think about now? My weight…

One Year Follow-Up: Stanmore Pain Management and Rehabilitation Programme

Can you believe that it’s been a year since I spent three weeks in rehab? Where has the time gone? I distinctly remember the nerves I felt the weeks leading up to the programme as if it was last month. The apprehension, the anticipation, the terror. I was terrified, I’ll openly admit that; it was…

I’m Really Flexible and it’s NOT Sexy

I have Ehlers-Danlos Syndrome type 3; the hypermobility kind, the stupidly bendy ‘how don’t you snap?’ one. Some people will probably call the majority of us with EDS 3 – double-jointed, but that’s a myth, I mean, how can you have double the amount of joints? I’ve written quite a few posts on EDS, and…

Proprioception and Ehlers-Danlos Syndrome

When I was diagnosed with EDS type 3, (hypermobility, HEDS, whatever you want to call it) ten years ago I was naive enough to think that Ehlers-Danlos would be the strangest words I’d hear regarding my condition. Alas, my nineteen year old self soon learned a lot more; proprioception being one.What is proprioception?Basically, proprioception is…

Why Having a Chronic Illness Sucks

Today is Rare Disease Day and I thought I’d share some things I hate about having a chronic illness. I’ve suffered with chronic pain for sixteen years, and here’s a few things that are shitty about it. The actual illness and comorbidities are crap, painful, stressful etc. Constantly cancelling/rearranging plans Inability to be spontaneous Never…

A Day In The Life: Ehlers-Danlos Syndrome

This week it’s Hypermobility Syndromes Awareness Week #HMSAware and obviously it’s really important to me as I have Ehlers-Danlos Syndrome Type 3. What many people don’t realise is that the HMSA (a bloody amazing charity) take all hypermobility syndromes into account, not just EDS, and it’s vital that the other hypermobility syndromes get enough attention…