EDS Awareness Month – From Sarah Lex

Date:May 6, 2016Posted By:fromsarahlexComments:15 CommentsCategory:chronic, chronic condition, chronic illness, chronic pain, disability, disabled, EDS, EDS Awareness Month, health, letter, spoonie

Letter To Myself on the Day of Diagnosis

As it’s EDS Awareness Month, I thought I’d write a letter to my nineteen year old self on the day I was diagnosed. It’s been almost 10 years since it was confirmed that I have Ehlers-Danlos Syndrome type III, but I’d suffered all of my childhood when I think back; it just got a lot…

I Told A Stranger That I’m Disabled

May to me is all about EDS Awareness Month. I was diagnosed with Ehlers Danlos Syndrome when I was 19, (10 years ago now, that makes me feel old) it took over six years before I received a diagnosis and there is still not enough knowledge about EDS.I’m really awkward when it comes to talking…