Diagnosed 10 Years Ago Today

Last month I wrote a letter to myself on the day I was diagnosed, I mentioned that the date has been burned into my memory, and today is that date ten years on.  06/06/06Six six six Ten years. Ten whole years since someone told me the strangest words I’d ever heard. Since, I didn’t have…

May Awareness Month: Ehlers-Danlos Syndrome

I have Ehlers-Danlos Syndrome. May is Ehlers-Danlos Syndrome Awareness month. Have you ever heard of EDS? EDS is caused by faulty collagen, it’s genetic, I was born with it. There are several different types, some much rarer and severe than others. I have type III, more commonly known as the hypermobility type; I’m very bendy, have…