Last year I wrote a post about being disabled and wearing makeup; I never thought it’d get as much attention as it did because I was simply expressing my views on how society judges disabled people that choose to put cosmetics on their face. I knew it was as issue, I knew a lot of…
Category: chronic pain
Diagnosed 10 Years Ago Today
Last month I wrote a letter to myself on the day I was diagnosed, I mentioned that the date has been burned into my memory, and today is that date ten years on. 06/06/06Six six six Ten years. Ten whole years since someone told me the strangest words I’d ever heard. Since, I didn’t have…
A Reply: Why Take Medication if it Doesn’t Take Away All the Pain?
I’ve seen this question asked a lot on social media lately, ‘why take medication if it doesn’t take away all the pain?’ I’m pretty sure most chronic pain sufferers have had to answer it at one point, and if you haven’t you no doubt will in the future.I was 17 the first time I was…
What Would You Do If You Were No Longer in Pain?
I often wonder what it would be like to not be in pain. Every day is exhausting. Every day different. Every day a question mark. I don’t know if I’ll wake up and be in agony and have to cancel plans. I don’t know what kind of mood I’ll be in. I can’t guarantee that…
Letter To Myself on the Day of Diagnosis
As it’s EDS Awareness Month, I thought I’d write a letter to my nineteen year old self on the day I was diagnosed. It’s been almost 10 years since it was confirmed that I have Ehlers-Danlos Syndrome type III, but I’d suffered all of my childhood when I think back; it just got a lot…
I Told A Stranger That I’m Disabled
May to me is all about EDS Awareness Month. I was diagnosed with Ehlers Danlos Syndrome when I was 19, (10 years ago now, that makes me feel old) it took over six years before I received a diagnosis and there is still not enough knowledge about EDS.I’m really awkward when it comes to talking…
Putting Yourself First – Self Care
Self care is so important for everyone, whether you’re a Spoonie or not. But if you are chronically ill, it’s even more important to put yourself and your needs first. It’s not selfish, it’s being kind to yourself. Taking care of yourself is not a new thing but it is something we need to be…
Brain Fog #2
I wrote a post on brain fog back in January and received an overwhelming response from people who also tackle their foggy brains; they could empathise but also chuckled at the hilarity that comes out of my mouth, (my fellow Spoonies know all too well as they experience it too). In my opinion laughter is…
My Relationship isn’t 50/50
This doesn’t bother me in a way that I’m fixated upon it, but it is something in the back of my mind; especially with regards to how outsiders view things. My relationship with my boyfriend, Ian, isn’t 50/50, it’s not equal. What I mean is, he does absolutely everything. It seems like his whole being is consumed…
The Positives of Having a Chronic Illness
Last week I wrote about Why Having a Chronic Illness Sucks, so this week I thought I’d put a more positive spin on things and list (yes, I love a list) a few things that aren’t so bad about living with a chronic condition. Made me strongerI’m in pain every single day, sometimes to the…