If you don’t follow me on any of my social media platforms you might not have seen me raving on about how I was in a BBC Three short film. If you’ve not watched it, I urge you to go and do that now, I’ll link it here but I’ve also embedded it down below. Back…
Category: chronic illness
Let’s Get it On: Sex and Disability
Last weekend a journalist came to my house and interviewed me on what it’s like having a sex life whilst disabled. We spent almost two hours discussing this subject that seems to be one of the most controversial and taboo topics when it comes to disability. Obviously I don’t find it unmentionable, or I wouldn’t…
Talking About My Illness Doesn’t Make Me Negative
‘Behind every exquisite thing that existed, there was something tragic’ Oscar Wilde The above quote will be tattooed on me someday. I love it and I love Oscar Wilde. I also thinks it rings true for my life, especially my illness. I don’t see my disability as a tragedy or something awful now, but when…
30 Things My Chronic Illness Has Taught Me
Well, I’m 30 now guys, I officially left my twenties behind yesterday and wheeled right into my dirty thirties. I don’t feel any different and I’m constantly told I don’t look my age, so I have nothing to complain about. I’ll be celebrating my birthday this weekend when my parents come to visit with my…
Do You Know What ‘Chronic’ Means?
I wrote a few posts last year about empathy, and in one I briefly touched on what ‘chronic’ means but I thought I’d go a bit more in-depth, well, because I want to. If you’d like to read my posts on empathy, part one is here, and part two here. I don’t know about you…
7 Parts Of My Chronic Illness That Not Everyone Sees
I’m always very open and honest about my chronic illnesses (or at least I try to be) but there’s still sides of my condition that not everyone is aware of. Why? Because my health makes me quite vulnerable and only people that live with me see me at my worst. At the moment I live…
Health Update | PoTS Follow-Up
In September I went for three days of autonomic tests at the National Hospital for Neurology and Neurosurgery – you can read all about the tests I had here. I received a letter a few weeks after my tests with my results but obviously still had to have a follow-up appointment with my consultant. I…
Brain Fog #3
Don’t expect to be reading this and learning something about brain fog, this series is all about the ridiculous things I say, or try to say, when brain fog has kicked in and I make no sense. I’m not a very serious person and I laugh quite a lot so I won’t take offence if you…
Wheelchair Update: £5k in 26 Days
WE DID ITTHANK YOU SO MUCH! A month ago I wrote a post about how I need a more specialised wheelchair; I had to raise £5000 and hoped to have it before Christmas. I wasn’t pinning my hopes on raising it really quickly and never in my wildest dreams did I think I’d raise it…
Mental Health Update: Paranoia, Rejection and Humilitation
I first discussed my mental health back in May; I touched on how confrontation terrifies me and that I’m consumed by paranoia. This hasn’t changed. Although I’m really, really working on it. I’ve figured a few things out about myself whilst going to CBT that have made me realise why I am the way I…